It may be hard for some people to accept their Vitiligo, because lets face it this disease destroys not only your pigment but your spirit also. You may have been a very outgoing person before your vitiligo and now that has changed and I understand what each and every one of you are going thru. Vitiligo has never been easy for me or anybody else who's come to accept it and embrace it. I love myself so why should I conform to somebody elses idea of what I should look like because they may be uncomfortable with my appearance I love myself too much to be dragged down by somebodys preconceieved notions of what my appearance should be. I have to live my life for me and not for others. accept me for who I am or just let me be because God makes no mistakes. I live by the word of god and his power is amazing so just be strong if your not right now because god has a plan for us just continue to pray for inner strengh and trust me god will open up new chapters in your life and he will make you love yourself enough not to have to worry about what others may say about you. take care and god bless you all and remember you are not in this struggle alone we are all dealing with Vitiligo together but the key is acceptance I love each and every one of you here on vitiligo friends because your words and encouragement have made me a stronger person in this war on Vitiligo
~ By Carl R. Manley Monday July 27 2010 3:35 am Eastern Standard Time (E.S.T.) contact number (215) 376-4774 E-mail contact crltnmnly@aol.com
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I was born with vitiligo, which covers all of my legs, my tummy and small part of my forehead. It's more visible and there is a lot of uneven patches and dark dots. My parents and people around me always avoided the subject and no one ever talked to me about it. I would like to be able to listen and share with others. It's good to know I am not the only one. It is rather hard to explain how different it made me feel, but I would like to learn to accept it and maybe finally stop hiding. I find it hard to find some advise on how to deal with it and if there is actually anything I can do to make it less visible. Thanks in advance
Reading what you wrote was almost like reading something i posted myself!! It seems our situation is very similar! I was also born with vitiligo , it is hereditory in my family , despite this nobody ever spoke to me about what it was either . i am lucky in a way because i can hide it because it does not cover my hands or face. but it does cover my body and legs and some small patches on my arms. to this day i never wear shorts or take my top off at the beach. and very few people even my friends even know that i have vitligo. i must be very good at hiding it and at making up excuses when still wearing trousers in the summer!! or never going swimming! it makes you feel so much better inside to be able to tell somebody else how you feel that knows and understands exactly what it's like themselves. i hope to speak with you again soon bernadetta ....and everybody else : )
I'm just being diagonsed with Vitilgo. I'm handling it pretty well. I'm pretty comfortable in my skin and body. It does help probably that I am light skinned so it doesnt show up as much as it would with darker skin. However my arms & hands are tanned at the moment so my hands show up more. Finding new spots is a little unsettling but okay. I think there are a lot worse things out there which I could have. I'm mostly doing okay with my thinking & dealing with it. It helps I have a supportive & understanding family around me.
Carl, I agree with you. I have been on this site for around a month and @ first I was so sad all I did was think about having Vit. and I have had my white areas for probably 4-5 yrs and thought they were normal. I started obsessing to my wife about them and she had me go to the Dermatologist because I was 100% occupied with my skin. After the dr told me it was Vitiligo I was so sad! Then I said to myself enough is enough. I do have days where I start to fell bad for myself and I do look at my body pretty much every time I am in the bathroom but I have it and am going to enjoy life. THIS SITE HAS HELPED ME SO MUCH AND I WANTED ALL OF YOU TO KNOW HOW MUCH I APPRECIATE ALL YOUR COMMENTS AND SUPPORT AND SEND ME A MESSAGE IF ANY OF YOU NEED HELP OR SUPPORT.GOD BLESS YOU ALL!!!!!!!!!
Hey William I'm glad to hear about your situation and that this site has helped you get over your issues dealing with vitiligo we all need inspiration at times especially when it comes to vitiligo and this website is a huge source of strengh and courage for anybody who's going thru what we are going thru and I will make sure to send you a message if I need support just as I know you would do it for me also
hey everybody, carl has i told u b4 god is using u on this site to trully give words of encouragement, i really just want to get to a point were i dont care wat ppl think. ppl chosse not to understand what they dont have to face everyday we live in a world were we are judge purely on the way we look. Rather than by are hearts or what we have to offer. This is life but i vow not to judge anyone has i have no right, the only person who can judge anyone of us is GOD and trust his opion is the only one who counts no one else because we all have flaws ours are just alot more visible.
Thank you Carl. Your words are so true. I felt unappreciated as a child and all through my teenage years and early twenty's. There were so many times I thought I was not given an opportunity to be who and what I wanted to be.
When vitiligo came I thought it was the final straw. With feeling very under appreciated I had to have a strange disease. I used to hide and refuse to come out. I had no clue what it was and I really didn't accept that I had it so it just got worse.
Meditation helped me, and drew me out to live again. I finally went beyond vitiligo because I reconnected with my spirit via meditation. I started to love myself and suddenly vitiligo didn't matter any more. Self love, acceptance, and approval is so very important.
People with vitiligo are the nicest people on earth.
You are so right Dawn we people with vitiligo are some of the nicest people you would ever want to meet, but so many people are affraid of us because they don't understand vitiligo or understand what we go thru
Replies
Hi All,
I was born with vitiligo, which covers all of my legs, my tummy and small part of my forehead. It's more visible and there is a lot of uneven patches and dark dots. My parents and people around me always avoided the subject and no one ever talked to me about it. I would like to be able to listen and share with others. It's good to know I am not the only one. It is rather hard to explain how different it made me feel, but I would like to learn to accept it and maybe finally stop hiding. I find it hard to find some advise on how to deal with it and if there is actually anything I can do to make it less visible. Thanks in advance
Bee
Reading what you wrote was almost like reading something i posted myself!! It seems our situation is very similar! I was also born with vitiligo , it is hereditory in my family , despite this nobody ever spoke to me about what it was either . i am lucky in a way because i can hide it because it does not cover my hands or face. but it does cover my body and legs and some small patches on my arms. to this day i never wear shorts or take my top off at the beach. and very few people even my friends even know that i have vitligo. i must be very good at hiding it and at making up excuses when still wearing trousers in the summer!! or never going swimming! it makes you feel so much better inside to be able to tell somebody else how you feel that knows and understands exactly what it's like themselves. i hope to speak with you again soon bernadetta ....and everybody else : )
sam
I'm just being diagonsed with Vitilgo. I'm handling it pretty well. I'm pretty comfortable in my skin and body. It does help probably that I am light skinned so it doesnt show up as much as it would with darker skin. However my arms & hands are tanned at the moment so my hands show up more. Finding new spots is a little unsettling but okay. I think there are a lot worse things out there which I could have. I'm mostly doing okay with my thinking & dealing with it. It helps I have a supportive & understanding family around me.
Hey William I'm glad to hear about your situation and that this site has helped you get over your issues dealing with vitiligo we all need inspiration at times especially when it comes to vitiligo and this website is a huge source of strengh and courage for anybody who's going thru what we are going thru and I will make sure to send you a message if I need support just as I know you would do it for me also
When vitiligo came I thought it was the final straw. With feeling very under appreciated I had to have a strange disease. I used to hide and refuse to come out. I had no clue what it was and I really didn't accept that I had it so it just got worse.
Meditation helped me, and drew me out to live again. I finally went beyond vitiligo because I reconnected with my spirit via meditation. I started to love myself and suddenly vitiligo didn't matter any more. Self love, acceptance, and approval is so very important.
People with vitiligo are the nicest people on earth.
You are so right Dawn we people with vitiligo are some of the nicest people you would ever want to meet, but so many people are affraid of us because they don't understand vitiligo or understand what we go thru
I’m sorry but I think ppl are stupid. I know that the wrong choice of words but oh well I’m entitled to my opinion ..lol.
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