My name is Johnny - I am a member of the Board of Directors as well as the spokesperson for the NVFI - National Vitiligo Foundation.
I have been an active board member for the past 4 years or so. I have had Vitiligo most of my life.
I have done interviews on behalf of the NVFI. For example, check these links:
Recent interview published on a health website:
http://news.medill.northwestern.edu/chicago/news.aspx?id=161278
Interview on a local Fox News affiliate:
https://www.youtube.com/watch?v=8lzg4Ch9ovM&feature=player_embedded
I am actively looking for various ways to get the message out and increase awareness of Vitiligo as well as awareness of the National Vitiligo Foundation and Vitiligo Friends - if you have any ideas, I am always willing to listen!
Please contact me directly at my personal e-mail address: johnnyramos@wi.rr.com
I look forward to hearing from you, if only to say hi and share your story - I am always willing to share mine!
Johnny
You need to be a member of Vitiligo Friends to add comments!
Replies