I've never felt the need for medication, and I try not to fill my body with anything that isn't a natural product of the earth, as my body seems to reject it. I am already on a strict diet because on food allergies and am thankful for any food that I can eat. I can't imagine cutting anymore food out of my diet!
We hear that stress is bad for our vitiligo, and I'm wondering that if going on strict regiments, diets and applying medication 3 times a day is doing less good for our systems. The apprehension and disappointment that happens if a treatment doesn't work would be enormous on the emotions and soul.
Would just living a happy enjoyable life be better in the long run, without the worries? Just some random thoughts...
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I'm also a person that has learned to embrace her vitiligo. I don't know the disappointments of failure treatments and I also don't know the joy of treatments that could have worked. I do feel the pain of the ones who are trying treatments and not working. I admire the fight in them to keep looking and trying new things. I do not like articles that say they can cure your vitiligo. I think that is so misleading. They don't know what caused your vitiligo but they can cure it. I agree that some treatments will cause more harm than good and sometime will make their vitiligo spread faster. Just like all the diseases of the past, a cure will be for vitiligo also.
I have taken treatments in the past that have worked.When I was younger I had it on my elbow and eyelids and a steriod cream they gave me got rid of it. Also recently I was starting to get it on my nose (my worst fear is the face). Applying the cream made it go away (though I think it is comin back). I am one that is having a hard time with my vit especially since it has been spreading. I have had it for about 11 years but its only been spreading in the last 3 years. I think about going to the doctors to continue using the creams and meds they give me but I for one do not want to get my hopes up high and then be disappointed it takes it's toll. I am lucky to have close ones that support what I do. It is not so bad now I have it on my hands feet elbows (and a few other scattered small spots here and there). My fear is when I am out in the world. I have always been a very outgoing person and am starting to become someone I am not (very closed, keeping to myself outside of my world). I am willing to do makeup to cover what I have though I know it may be a pain to apply daily. I would consider depegmintation if I got it over 50% of my body. I currently have it on about 8%.
My vit came about 12 years ago. I went to a dermatologist who gave me a steroid cream.I applied the cream and had a bad reaction to it within' minutes.That was the last treatment I ever used. My vit is so far gone I'll just let it take its natural course.
I have a very supportive wife(31 years) and daughter(adopted) who make sure i use sun block,wear my hat and sunglasses before I leave the house. I can't hide my vit. My hair is almost completely white/grey ( I call it platinum :) ) .
I've played my guitar in front front of hundreds of people,once the music starts the staring quits and the listening takes over.My step-dad who has had vit his whole life raised me since I was little.He is my hero.If it weren't for his positive attitude and dedication to raise our family I would probably have had issues because of the vit. Being Mexican/American the only problem I have is turning into a white boy :), I really miss my natural skin color.
Yeah, if you’re able to embrace your vit and lead a happy enjoyable life… why not? It would be awesome. I doubt many people will be able to do that though (including me).
I agree that the anticipation which often results in disappointment (as the current treatments don’t seem to have a long lasting effect) can be more distressful than having vit in itself.
I can understand your need for treatment, I hope you can still keep happy and positive through the rough times :) Make sure you take the time to spoil yourself and treat yourself well! Best of luck!
Replies
I'm also a person that has learned to embrace her vitiligo. I don't know the disappointments of failure treatments and I also don't know the joy of treatments that could have worked. I do feel the pain of the ones who are trying treatments and not working. I admire the fight in them to keep looking and trying new things. I do not like articles that say they can cure your vitiligo. I think that is so misleading. They don't know what caused your vitiligo but they can cure it. I agree that some treatments will cause more harm than good and sometime will make their vitiligo spread faster. Just like all the diseases of the past, a cure will be for vitiligo also.
I have a very supportive wife(31 years) and daughter(adopted) who make sure i use sun block,wear my hat and sunglasses before I leave the house. I can't hide my vit. My hair is almost completely white/grey ( I call it platinum :) ) .
I've played my guitar in front front of hundreds of people,once the music starts the staring quits and the listening takes over.My step-dad who has had vit his whole life raised me since I was little.He is my hero.If it weren't for his positive attitude and dedication to raise our family I would probably have had issues because of the vit. Being Mexican/American the only problem I have is turning into a white boy :), I really miss my natural skin color.
Yeah, if you’re able to embrace your vit and lead a happy enjoyable life… why not? It would be awesome. I doubt many people will be able to do that though (including me).
I agree that the anticipation which often results in disappointment (as the current treatments don’t seem to have a long lasting effect) can be more distressful than having vit in itself.