Hi All,
Since joining this group a couple years ago, I've yet to come across anyone who has experienced extensive and permanent repigmentation. Prior to joining, I contacted Steve Hargadon, and my feeling was there is no such person.
I would like to plainly pose the question...
Has any member of this group ever provided legitimate evidence of extensive repigmentation of non-segmental vitiligo?
I'm not referring to freckles or small patches. I'm only interested in dramatic changes. Frankly, I know of no such person and I do not believe there is such a person. At the same time, I rarely check this forum.
Photo evidence with testimony is a must. It's understood photo evidence is very difficult to acquire. Most of us avoid pictures of the patches whenever possible.
Thank you,
Jim
Replies
Jim,
I agree that pictures are hard to be acquired, even when a patient is having success in a treament. It's like he/she doesn't want to be dissapointed if it fails later on. Besides, vitiligo fight has to be a permanent fight (a surrender).
In my opinion, repigmentation is highly possible if you follow the proper regimen. However, hands and feet patches are really stubborn, specially around the joints and finger nails.
I have seen dramatic improvements in many different cases (most of them are online). Regarding hands and feet, I have come up to a conclusion that the only way to repigment them is by cell transplantation.
I hope that helps.
Regards,
Flavio
Hi Flavio,
If you look at my profile picture, it's an example of what I would now consider permanent repigmentation on the back of my left hand. It was the first(oldest) spot of vitiligo(developed in 2007). The back of the hand rapidly repigmented in the spring of 2013 and has remained the same since. There's been no changes(that I've observed) in my own vitiligo since 2013.
My apologies here. I do not intend to be combative but I must be direct. From my own perspective, most of your advice is based on nothing more than nonsense. In myself, repigmentation has not been the result of medical advice, procedures, creams, strict diet, etc. Frankly, the exact opposite. Think booze, cigarettes, and lots of fatty foods and that is me. I'm sure I've insulted you. Don't feel bad. Just be glad you're not my doctor :)
Most of my own vitiligo is gone. However, patches remain. It is my objective to find others who have experienced similar results. Find the connections and follow the scientific method.
Jim
Not insulted at all. Speech and judgement are free.
Back of hands repigment because they have follicles and consequently stem cells. The real problem are patches around the finger joints and nails.
If you check the medical paper references at my website (www.vitiligomap.com), you will see that each paper seems in fact nonsense (individually). But when you put all together, then it makes some sense.
Ref: http://www.vitiligomap.com/ref.html
Cheers.
Your words are inspiring because you convey a can-do rather than a can't-do attitude.
Meaningful success is what counts. Here's an example that is at least interesting: http://www.thevitpro.com/my-vitiligo--cure.html
Asking a question may lead to an answer. Without questions, answers cannot be found.
John,
As well as Guru: http://simonsvitiligoblog.com/gurus-update-balancing-the-immune-sys...
Notice that the darker areas are the ones that re-pigmented. Color match comes later...
Unfortunately, it appears he still has a lot of surface area that remains depigmented. :(
Hi, Jim -
That was my conclusion almost 10 years ago, which is why I decided to depigment. Nevertheless, I wish you the best in your repigmentation efforts.
Kindest regards,
Jackie