Posted by Miguel Meza on January 21, 2010 at 9:59am
ok we all know like 90% of the time us V people put eatch other down with or own words...cuz i read the discussion n see others opinios n be like dang theres no other choice then to feel like this n it fits in with my life...,..idk if ucould understand me or know were am coming from but theres so much negative with us its crazy...am srry i just had to share
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yea i know we are diffrent thats why this is a support group to talk about eatchother feelings towrds V...but waht am saying...that there was a time were i did accepted my V n i was good.. so when i see people struggling with there V i talk to them how i over came mine n they start saying how can u over come this..if theres no cure n i tell them am in treatment n is going pretty good they think am putting in there face. am not putting in there face cuzwe all know we struggle with this all of us...at one point..all i was trying to say that its sucks when someone is trying to help n they shut u down completely..with negativity
Hey Miguel !! Thanks for sharing your thoughts !!!
There are people here who have accepted their Vitiligo - probably because there is no known permanent cure (yet !!).
And there are people here, like me, who find it hard to accept VIT - even though there is no known permanent cure yet. So we try all kinds of semi-permanent treatments to at least try and control VIT - until a "cure" is found.
BUT ... what both these types of people have in common is that if a permanent cure is found tomorrow - they all will take it !!! I hope EVERYONE here can agree with me on that. and forget all other "differences".
Like Sarah said - everyone here IS trying their best to help one another. And that is how it should be.
Hi Guys... I dont think anyone is a victim...I do not think it should be called a "cure"... I truely beleive that it is a condition and there is a remedy..... we are seeing a chinese herbalist and accupuncturist....American doctors only know what they read and what was FULLY documented and worse yet......APPROVED by the FDA... and they are all cautious and walk on egg shells around vit patients..in my opinion they dont want 1 of 2 things happen,,,,,,1 - a law suit for their lack of knowledge and ignorance to vit... and # 2 -- cant go against the FDA and western medicine...We saw a derm on tues and I mentioned alternative chinese herbs and accupuncture and tincture and the Dr. was like (( hummina humminaaa humminaaa ) and looked a bit like the cat s got your tongue
Ummmmmmmmm Excuse me Miguel but I think everybody on this website is a victim of the "V" that's why they call it Vitiligo Friends no one tries to put another person down on this site, it's just that some of us are stronger about our Vitiligo than others so, please don't confuse one person's strong self esteem for putting somebody down because that's not the purpose of this site we are trying to build up peoples courage,confidence and characters here not tear them down, because we get enough of that from people on the streets when the stop,stare and whisper behind our backs !!!!!!!!!
Sarah M > Carl R. ManleyJanuary 22, 2010 at 8:25am
Nadika, completely agree with u LOL , thanks dear friend ;-)
Everybody is different. How big is your heart and how much are you willing to share good or bad,happy or sad. We all have bad days but I lose count of all the good days I've had with my family,friends and co-workers. I think many here reach out for advice on having enough self esteem to overcome and living with vit. Stay the course...you will find peace and happiness in paradise. Until I found this site I now have hope that younger generations will benefit from doctors who continue to find a cure.
@ Miguel, I'm I missing something? Where's the 'so much' negativity? There's many of us (over 1000 ppl) and of course there might be a few disagreement but that doesn't necessarily mean ppl are hating each other....
I honestly do think everyone here is trying their best to help one another ...
Don't forget that, like Pat said everybody is different, some people have accepted their vitiligo and there are people like me who are still struggling .... I guess time is a healer....
Hey Pat I couldn't of said it better myself, being self conscience (weak) or having self esteem (being strong) about your Vitiligo depends on the individual himself should a person who's self esteem is strong apologize to a person who's very self conscience about their Vitiligo should a person with Vitiligo who wants to go out to a club with their friends and family not go because they know somebody else with Vitiligo who's affraid too go out because somebody might stare at them? We all handle our Vitiligo in our own ways but I personally feel that one person's sadness should not stop another person's happiness because we are individuals and we do what makes us happy and I guess others do what continues to make them sad maybe it's time for a change in their lives so they can see the world thru our eyes
Replies
There are people here who have accepted their Vitiligo - probably because there is no known permanent cure (yet !!).
And there are people here, like me, who find it hard to accept VIT - even though there is no known permanent cure yet. So we try all kinds of semi-permanent treatments to at least try and control VIT - until a "cure" is found.
BUT ... what both these types of people have in common is that if a permanent cure is found tomorrow - they all will take it !!! I hope EVERYONE here can agree with me on that. and forget all other "differences".
Like Sarah said - everyone here IS trying their best to help one another. And that is how it should be.
Ummmmmmmmm Excuse me Miguel but I think everybody on this website is a victim of the "V" that's why they call it Vitiligo Friends no one tries to put another person down on this site, it's just that some of us are stronger about our Vitiligo than others so, please don't confuse one person's strong self esteem for putting somebody down because that's not the purpose of this site we are trying to build up peoples courage,confidence and characters here not tear them down, because we get enough of that from people on the streets when the stop,stare and whisper behind our backs !!!!!!!!!
@ Miguel, I'm I missing something? Where's the 'so much' negativity? There's many of us (over 1000 ppl) and of course there might be a few disagreement but that doesn't necessarily mean ppl are hating each other....
I honestly do think everyone here is trying their best to help one another ...
Don't forget that, like Pat said everybody is different, some people have accepted their vitiligo and there are people like me who are still struggling .... I guess time is a healer....
Hey Pat I couldn't of said it better myself, being self conscience (weak) or having self esteem (being strong) about your Vitiligo depends on the individual himself should a person who's self esteem is strong apologize to a person who's very self conscience about their Vitiligo should a person with Vitiligo who wants to go out to a club with their friends and family not go because they know somebody else with Vitiligo who's affraid too go out because somebody might stare at them? We all handle our Vitiligo in our own ways but I personally feel that one person's sadness should not stop another person's happiness because we are individuals and we do what makes us happy and I guess others do what continues to make them sad maybe it's time for a change in their lives so they can see the world thru our eyes