If a cure was discovered that would gradually bring back pigmentation, would you want it? I'd assume that gradual re-pigmentation would be like re-opening old wounds. What about you?
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Fays - if I go white - I will never go back to my "old" color either ))) I have told you this before - your "new" color looks good on you !!!! Take care, buddy !!! :-)
am not speaking hypothetically its fact -- what do you Mean ( if our "cure" goes wrong and I start getting white spots again ) ? white People cant get white spots .
Hey Fays )))) I know white people cant get white spots )))) What I meant was - now I am brown. Say, I turn white, either naturally or medically. Thereafter - the so called "cure" finally comes, which works for naturally and medically depigmented people - and I use it to turn brown again. What if the effects of the "cure" goes wrong and is temporary, and a few years after going brown I start developing white spots again ???!!!!!! No THANKS !!! I will remain white. Hope I did not confuse you ))))) Okay??
Im sure that Nadika was saying if there were to some day be a cure that brought back skin colour, imagine the heartbreak of it failing in the future, and once again losing pigment after having regained it.
As I was diagnosed as a little kid, I never sought out any sort of re-pigmentation treatments. Being 99% naturally de-pigmented, I'd be wary of any side-effects that could occur in re-pigmenting my skin.
As I was diagnosed with a thyroid condition (Graves' Disease) seven years ago, I think it's highly unlikely that were there a cure, I'd be able to become re-pigmented. From what I've read, they find those patients who have both vitiligo and thyroid conditions to not be good candidates for re-pigmentation. If anyone has any data that proves otherwise, please share it.
It would be really nice to have my natural color back and never have to worry about sunblock or having to wear a hat. Scalp sunburns are the worst!
Having lost it all before I'm certainly at a different place now with a new perspective so were my natural color to come back in spots, I'd handle it differently. The only remaining pigment I currently have are quite visible, two spots on either side of my face where my jaw and neck meet and the last one under my left eye.
Whether or not I would seek treatment if a hypothetical cure would be based on the issues I posed. A lot of people mention to me after I explain about my journey that now I should be happy that it all worked out. And I am in a much happier place now than I was in my past. But it wasn't instant, I've spent a lot of time working it out in therapy. Slowly, I'm accepting my "new skin."
The issues that come up with vitiligo aren't erased with the complete loss of pigment. I think at times that people (outside of the vitiligo community) aren't sensitive to that. It's not like "Yay, I'm cured!"
As a child, I longed not to have vitiligo. There were times where I'd obsess over my spots and other times where I'd forget and then check to see if they were still there. I always imagined myself as forever spotted or a return to my natural pigment. I never expected this and in all honesty I didn't want this. I've always wanted my natural pigment back.
So - medical depigmentation - irreversible. Natural depigmentation - reversible :-) Thanks !!!! Either way, if I go all white - I will not go back to being brown through a future cure. What if our "cure" goes wrong and I start getting white spots again ????? )))))))))))))))))))) (Sorry !!!! Had to say it - since we are all hypothetically speaking here !!!)
I am sure I read somewhere that once you are fully depigmented - it is irreversible. A future cure for Vitiligo will not work on them - because depigmentation destroys all pigment left in your skin. Of course .... you were speaking hypothetically :-)
Replies
As I was diagnosed with a thyroid condition (Graves' Disease) seven years ago, I think it's highly unlikely that were there a cure, I'd be able to become re-pigmented. From what I've read, they find those patients who have both vitiligo and thyroid conditions to not be good candidates for re-pigmentation. If anyone has any data that proves otherwise, please share it.
It would be really nice to have my natural color back and never have to worry about sunblock or having to wear a hat. Scalp sunburns are the worst!
Having lost it all before I'm certainly at a different place now with a new perspective so were my natural color to come back in spots, I'd handle it differently. The only remaining pigment I currently have are quite visible, two spots on either side of my face where my jaw and neck meet and the last one under my left eye.
Whether or not I would seek treatment if a hypothetical cure would be based on the issues I posed. A lot of people mention to me after I explain about my journey that now I should be happy that it all worked out. And I am in a much happier place now than I was in my past. But it wasn't instant, I've spent a lot of time working it out in therapy. Slowly, I'm accepting my "new skin."
The issues that come up with vitiligo aren't erased with the complete loss of pigment. I think at times that people (outside of the vitiligo community) aren't sensitive to that. It's not like "Yay, I'm cured!"
As a child, I longed not to have vitiligo. There were times where I'd obsess over my spots and other times where I'd forget and then check to see if they were still there. I always imagined myself as forever spotted or a return to my natural pigment. I never expected this and in all honesty I didn't want this. I've always wanted my natural pigment back.
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