is it real??? where i live this thing named vitiligo is considered distortion all the time i'm trying to hide either by makeup or avoiding people really i feal bad
I am new to the group and the vit but I am thankful that we live in a culture where we can discuss things openly with people.We do however have a culture that is concerned with the way things look. I have what is the beginning of the loss of color on my mouth, hands and feet but it seems to be changing the color of my skin all over my body. I have not been out in the sun this summer and I am wearing sunscreen on my face every day. I wish that I could have another vit person look at my skin and say yes that is what it looks like. I go back to my dermatologist in August. Should I ask her to use a woods lamp on my skin to determine the locations of the condition?
I guess I kind of go by the rule of thumb to treat them the way I would like to be treated. I look at their eyes and their smiles instead of their skin, and I try to interact with them like I do with my co workers or friends. Sometimes it's just ice being treated like a "normal" person by someone who understands.
Maybe it has something to do with being raised to mind my p's and q's, but I tend to politely pretend to ignore another person's patches. While I am perfectly comfortable with people asking me about it (I've had people actually want to touch the spots on my hands- I say sure, be my guest!), I know that there was a time when I was very uncomfortable with it and didn't want to talk about it.
Mind you, I'm 26 and have had this since I was 9, so I've learned to accept simple human curiosity or friendly recommendations of dermatologists or tanning creams, but I will say I almost went nuclear on a woman one day when I was at the mall...when I was 24 *sheepish look*. She worked at an unnamed body products and cosmetics store, and was telling me I just HAD to try their new mineral foundation. I politely explained my skin condition and that after years of searching, I have finally found on my Holy Grail of foundations. She stops me mid sentence (big pet peeve) and says, "I know, I know. This is formulated for Asian women who, like you, use creams to lighten their complexion. This just evens everything out."
I'm a lady and I don't raise my voice, but I very curtly told her that the situation on my face wasn't some voluntary act of vanity. It was an auto immune disorder, and she would be well advised to do her homework or enroll in medical school before doling out advice on something she has NO idea about. Again, I don't mind curiosity, and I think I might actually pee myself with happiness is somebody else with my disease called me out in public (it's like a prison tattoo, but way cooler), but I don't want unsolicited advice.
Believe it or not, some people are uncomfortable looking at other people with Vitiligo and I found this out by first hand experience when I tried to reach out to another person whom I saw with vitiligo and I was shocked to hear about people who remove all the mirrors from their houses too I didn't think somebody would ever go that far to keep from seeing even their own vitiligo but I guess we all have our own ways of dealing with things !!!!!
I had a teacher last year with vitiligo - she's my favorite teacher in the world! I could talk to her about anything and we were very close. She has it very minimally and approached me and asked me about it. I was so happy I finally met someone with vit!
♥Abby
I wouldn't mind seeing someone with vit. I don't recall ever seeing anyone else while I've been out; maybe I just didn't notice. I would go up and start a conversation as long as they won't with a group of people because I wouldn't want them to feel uncomfortable. If the person reacted in a mean way I would probably still try to approach someone else I encountered. When I was diagnosed I just felt the need to talk to someone going through the same thing. My family and friends I've spoken to just don't understand what I'm going through. That desire would probably keep motivating me to talk to strangers with vit.
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Mind you, I'm 26 and have had this since I was 9, so I've learned to accept simple human curiosity or friendly recommendations of dermatologists or tanning creams, but I will say I almost went nuclear on a woman one day when I was at the mall...when I was 24 *sheepish look*. She worked at an unnamed body products and cosmetics store, and was telling me I just HAD to try their new mineral foundation. I politely explained my skin condition and that after years of searching, I have finally found on my Holy Grail of foundations. She stops me mid sentence (big pet peeve) and says, "I know, I know. This is formulated for Asian women who, like you, use creams to lighten their complexion. This just evens everything out."
I'm a lady and I don't raise my voice, but I very curtly told her that the situation on my face wasn't some voluntary act of vanity. It was an auto immune disorder, and she would be well advised to do her homework or enroll in medical school before doling out advice on something she has NO idea about. Again, I don't mind curiosity, and I think I might actually pee myself with happiness is somebody else with my disease called me out in public (it's like a prison tattoo, but way cooler), but I don't want unsolicited advice.
Believe it or not, some people are uncomfortable looking at other people with Vitiligo and I found this out by first hand experience when I tried to reach out to another person whom I saw with vitiligo and I was shocked to hear about people who remove all the mirrors from their houses too I didn't think somebody would ever go that far to keep from seeing even their own vitiligo but I guess we all have our own ways of dealing with things !!!!!
♥Abby
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