Posted by Emily McGlone on November 18, 2010 at 3:43am
how often do you go to see a dermatiologist? i have had vitiligo for tweentythree years and have only been once. i guess i just figured nothing i could do about and i didnt notice big changes so no need to go. i am thinking i need to go but not sure how often and what for if i see no big changes, even if it does change a lot nothing a doc can do to stop it.......
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my parents took me to a dermatologist when they first noticed my skin when I was six years old. It was very traumatizing because the doctor brought in med students of both genders to look at my skin under blacklight. I have only been back to see a dermatologist once since then, when they prescribed protopic and it didn't help me. I don't really wany to go back =/
just out of curiosity, how long did you use protopic?
Caitlin Beier > Marty BlackEagle-CarlDecember 13, 2010 at 7:31am
ummm a few months
Nathan Yeti > Caitlin BeierDecember 12, 2010 at 3:15am
Caitlin:
I would like to make a suggestion. Pl visit the doctor, give it a try and see what they have to say. May be this time, they will prescribe a mild steroid for (weekend only) in addition to Protopic. Facial vitiligo is curable to a large extent.
Let me tell you this small story. I do not know, how old you are. About a year ago, I saw this young person, probably aged between 22-25. She has vit on her face, especially, her forehead, eyelids, cheeks etc Even though we go to derm every month, we never saw her until 2 months ago. She was sitting in front of us, literally 3 feet distant apart. I can say that, 90% of her vit disappeared. Our derm does not use any treatment other than topical creams simply. I was so happy for her. Of course, I did not ask details. Lacked courage simply. But, I can assure you that, no one will come to the Derm with some kind of cream on their face especially at 6:30 pm. Beause, it defeats the purpose. Derm has no chance to evaluate the real progress. I am sure she got the repigmentation. I guarantee that. Give it a try. nothing to loose really except few $ and time.
Caitlin Beier > Nathan YetiDecember 12, 2010 at 5:44am
thanks for the support but I've learned to love my vitiligo. it makes me special :)
Nathan Yeti > Caitlin BeierDecember 13, 2010 at 3:53am
Great. That's a very positive comment. Very nice to hear. Hopefully, we will learn that skill as well.
Emily: Please, see the Derm and try the medicine for few months and see what happens. Chances are it may not work. If you are lucky, it may work. HOPE for the best. See our story below:
My 10 yr child is the one who has the condition. We go to Derm every month religously, without fail. Never missed even one single appointment in the last 3 years. Actually, we also see an additional Derm every other month, just to have a second opinion. Both Derms bring rich experience, they have different techniques and analysis patterns. One uses his eyes to see Vit, another one uses Woods Light to spot vit. One strongly believes in Protopic. Another one added a second medicine on the weekends depending on the shape, intensity and most importantly, location of of vit, these changed the medicine and dosage. In summary, either we used protopic all week or protopic for 5 days and some other medicine on weekends (only for 2 or 3 weeks, since it is a very very mild steriod).
We saw great results (eyelids, elbows, knees, armpit, hips, inside of ears. Hence, based on our experience, we are of the opinion that, vit is treatable in the initial stages. We have no experience with established vit because,we never allow vit to grow. Lucikly (I repeat luckily), it has been working. If my child has to battle this condition this way lifelong, so be it. Derm says, that sometimes, vit can simply stop progressing. No way to predict.
I will admit that, we come from a family of doctors and hence, STRONGLY believe in medicine and and Doctors. Doctors do save lives. Without the Doctors, half a dozen of my family members would have passed away quite some time ago. YES, we are also VERY frustrated like many others on this forum that, there is no guaranteed treatment for Vit. Plus, not much of research is happening in pharma or derm industry. We have no choice other than keep trying with what we have. Keep believing that vit is treatable. That was our mantra..
Now, we are currently battling with lips. Lips are becoming more reddish. One Derm says, dont worry about it, another says,may be vit is in the initial stages. For now, we are not doing anything.
Replies
my parents took me to a dermatologist when they first noticed my skin when I was six years old. It was very traumatizing because the doctor brought in med students of both genders to look at my skin under blacklight. I have only been back to see a dermatologist once since then, when they prescribed protopic and it didn't help me. I don't really wany to go back =/
just out of curiosity, how long did you use protopic?
ummm a few months
Caitlin:
I would like to make a suggestion. Pl visit the doctor, give it a try and see what they have to say. May be this time, they will prescribe a mild steroid for (weekend only) in addition to Protopic. Facial vitiligo is curable to a large extent.
Let me tell you this small story. I do not know, how old you are. About a year ago, I saw this young person, probably aged between 22-25. She has vit on her face, especially, her forehead, eyelids, cheeks etc Even though we go to derm every month, we never saw her until 2 months ago. She was sitting in front of us, literally 3 feet distant apart. I can say that, 90% of her vit disappeared. Our derm does not use any treatment other than topical creams simply. I was so happy for her. Of course, I did not ask details. Lacked courage simply. But, I can assure you that, no one will come to the Derm with some kind of cream on their face especially at 6:30 pm. Beause, it defeats the purpose. Derm has no chance to evaluate the real progress. I am sure she got the repigmentation. I guarantee that. Give it a try. nothing to loose really except few $ and time.
thanks for the support but I've learned to love my vitiligo. it makes me special :)
Great. That's a very positive comment. Very nice to hear. Hopefully, we will learn that skill as well.
It is not easy.
good luck. you're beautiful.. do what you feel works for u.
emily
if you do not vist your dermatologist how are you looking to get rid of your existing vitiligo
there are always newer treatments available ,and you never know what works for you
regards
dr vivek
My 10 yr child is the one who has the condition. We go to Derm every month religously, without fail. Never missed even one single appointment in the last 3 years. Actually, we also see an additional Derm every other month, just to have a second opinion. Both Derms bring rich experience, they have different techniques and analysis patterns. One uses his eyes to see Vit, another one uses Woods Light to spot vit. One strongly believes in Protopic. Another one added a second medicine on the weekends depending on the shape, intensity and most importantly, location of of vit, these changed the medicine and dosage. In summary, either we used protopic all week or protopic for 5 days and some other medicine on weekends (only for 2 or 3 weeks, since it is a very very mild steriod).
We saw great results (eyelids, elbows, knees, armpit, hips, inside of ears. Hence, based on our experience, we are of the opinion that, vit is treatable in the initial stages. We have no experience with established vit because,we never allow vit to grow. Lucikly (I repeat luckily), it has been working. If my child has to battle this condition this way lifelong, so be it. Derm says, that sometimes, vit can simply stop progressing. No way to predict.
I will admit that, we come from a family of doctors and hence, STRONGLY believe in medicine and and Doctors. Doctors do save lives. Without the Doctors, half a dozen of my family members would have passed away quite some time ago. YES, we are also VERY frustrated like many others on this forum that, there is no guaranteed treatment for Vit. Plus, not much of research is happening in pharma or derm industry. We have no choice other than keep trying with what we have. Keep believing that vit is treatable. That was our mantra..
Now, we are currently battling with lips. Lips are becoming more reddish. One Derm says, dont worry about it, another says,may be vit is in the initial stages. For now, we are not doing anything.
Good Luck
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