Emotional support for children with vitiligo

Thank you for having this space. I’m new here. I live in El Salvador. My son had been recently diagnosed with vitiligo and I'm trying to give him all my support. I have found a lot of interesting information in this site and I will keep reading. My son has 10 years old and I really love him and want the best for him. He had been struggling different kinds of dermatitis and skin problems during his life but this is different. He just a have a few white spots but according to what I have read they are going to grow and get bigger. I think that I have to be well informed and it is my responsibility to give him the right tools to help him with his self esteem. I would like him to know the good person he is, even if he has some white spots. I would like him to be confident of himself, to avoid all kind of complexes, but it is hard for a 10 years boy to face this things. More than the kind of treatments available I would like to know about the emotional support and psychological help that my son would need. I’ll appreciate any information regarding the emotional support that people who suffer vit may need. Sorry if my English grammar is not properly. I’m making my best effort to be understandable. I’m used to read and understand English but I don’t use to write. Thank you.

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  • hello,

    im 14 years old and ive grown up with vitiligo since i was about 4 years old. vit is a rocky road but we all get through it and help eachother here. ive been talking to people and the have helped me through rough times with my vit. having vit isnt a bad thing, even though we think that sometimes. the hard part is comming to acceptance of or vit. i havent come to that yet. ive been trying to and im on my way. i believe that people with vit are given it because we are the strong ones that can handle the hardships of it. thats truly what i believe. we are all differnt and we all have inscurities. we just happen to have vit as ours.everybody has something they wish they could change about themselves. people will say mean things and try to put you down, trust me its happened to me. but they are only saying mean things because they want to make themselves fel better about themselves but making you feel bad. but there is nothing wrong with you and never will be,  we are just all uniuqe like everybody else on this earth. im here for emotinal support, we all are.  chat with people here we all help and listen to each other :).

     good luck we are here for you,

    Heather

    • Thank you very much for your reply, Heather. It has been really encouraging to read you. My little boy has vit and I think he's too vulnerable to handle it. I’m still in shook with the diagnose, but I have to be ready to support him, accept his vit, help him the most I can and give him all my love.

      It was a pleasure to read you.

       

      Marielos

      • you helping hiim through all of this and trying to understand the best u can in his situation will better him in this and it will make him stronger :)
        • Thank you very much, Heather. I really appreciate your answer.  I read other things you wrote in forums and it helped me a lot. You’re a very mature girl. Please, keep writing. I wish you have a nice day.

          • thank you, same to you :-)
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