Dear Sir, First of all I want to thank you for creating such a wonderful and unmatched forum for the people suffering from Vitiligo and their relatives. I have used the information available here from time to time for my own benefit and it has greatly helped me. I have also used this space as my own personal data bank where information can be stored permanently and reference to it can be takenwhenever needed. No such forum is available elsewhere for free. I cannot even imagine the effort, time and money you must have spent in creating and maintaining it. So for this reason I am addressing this complaint to you as I cannot see this forum being misused, simply because it just hurts too much. I tried to ignore it from time to time but no longer can do so. I would like to bring your attention two IDs - first Flavio and second Vitipatch. Flavio has used his real name as Flavio Coragem with email id fcoragem@gmail.com at some places while identity of Vitipatch is unknown. If you search this name Flavio Coragem on Google you will find that he heads a computer software firm of some sort and his visa application to the United States has been rejected, I don't know if it's the same person. They both have similar modus operandi. They both have created websites www.vitiligomap and www.vitiligopatches.com respectively. They give repeated reference to their sites from time to time which violates the condition -"use of the space to advertise". Giving reference to a website again and again amounts to advertising the website. It can be misused and monetary benefits obtained by such person by creating Internet traffic to his website. In regard to the second part of this complaint I would like to bring to your reference an earlier discussion started by id Tom M. http://www.vitiligofriends.org/forum/topics/flavio-is-manipulating-forum-content-to-obscure-member-posts The same thing as mentioned by Tom there has been done to me. I can be seen defending Flavio there which was a big mistake on my part as this person has done the same thing as mentioned by Tom to me as well in my last discussion which can be found at http://www.vitiligofriends.org/forum/topics/vitiligo-cure-for-the-future-generation-hypothesis-hope-and-wish He first posts a reply and when the other replies he deletes his original reply and inserts a new one in the middle. Why he does that? He must have a motive. Why he has a motive? He must have some benefit to be obtained . What Benefit? He wants to make himself look good. Why look good? So that people will take his opinion. What is the reason for that? So that he may tell people what to do. Like he does in this recent discussion where ID Vitipatch and Flavio can be seen to be working in unison. http://www.vitiligofriends.org/forum/topics/spreading-of-vitiligo Here a young girl from India can be seen asking for advice as to what she must do to prevent the spread of vitiligo. See that Vitipatch gives information about LDN and refers to his website, the girl replies to him that there is nothing on his website, Vitipatch gives no answer. Flavio jumps in tells every everything about LDN to the girl. What if the poor girl is taking LDN as of now and killing herself with it. If you research about LDN you will find that there is a huge Black Market behind it. There are huge dangerous side effects too like you cannot even sleep at night if you are taking it. They even tried to give LDN to me too in my earlier discussion about Pseudocatalase. What I mean to say Steve is that fooling people is a big industry many people are involved in it. There is a whole setup. People like Flavio and even researchers like Dr Matteo Bordignon may be involved in it. What it takes to set up a site like this and start acceptting donations in his name.- http://m.researchforvitiligo.com/2/about_2910856.html I remember that earlier Flavio was asking people here to contribute to help Dr Bordignon in his research for Vitiligo. The Cell Adhesion theory under which they are hiding is not even theirs as can be seen from this article http://www.jidonline.org/article/S0022-202X(15)37319-X/pdf The full text is not showing here you can check here https://www.ncbi.nlm.nih.gov/m/pubmed/25634357/ and follow the link given there for full text. Next what we will see is some sort of cream being publicised here by Flavio purportedly developed by Dr Bordignon. But that's how his future conduct will be. We must not forget the capacity of a person to reform. I therefore call for revocation of his membership because I think it can be done on basis of my first allegation. It must also be kept in mind that he is a repeat offender and his past conduct too has been shadowy So, I want to bring all this to your attention. So that you can take an informed decision. I could have send this request to you privately too but this way other people who feel the same can come here and give their opinions. My best wishes for a warm and prosperous new year to you.

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  • Friends and Steve,

    Please check the link suggested by him, but please read in full.  Don't do clipping (partial and contextless information)  as he is doing to fabricate a false story:

    http://simonsvitiligoblog.com/dead-sea-21-days-at-one-of-the-most-i...

    The link speaks for itself.   Also check the chronology, which is relevant, since in 2014 I really thought about going to see Dr. Schallreuter.  But them I decided to go to Dead Sea.  I met interesting people that described Dr. Schallreuter’s treatment.   Ever since,  I make all the knowledge that I acquired on this trip and on my own researches available to everybody.

    Regards,

    Flavio

  • I am closing my other discussions for comments except this one.
    I am also getting a bit tired.
    • I have done what was needed to done at my end.
      I don't want to respond to Flavio's replies any further.
      I said whatever as per my assumption had happened. Here I was exposing Flavio and there was my account getting hacked and money withdrawn.
      Only Police Investigation will reveal what really happened.
      If I see a link, then I will take further steps.
      • Dear Steve,

        Everybody in this forum knows that I advocate the self made pseudocatalase.  My website (www.vitiligomap.com)  teaches how to prepare it yourself, without the need to buy it already made.

        Finding excuses for mistakes is easy for coward people.  The hard part is to admit them.

        He makes pre-judgements based on "nothing", but clipped and fabricated information.

        Friends, be aware of him.

        Regards.

      • I made a link because earlier before posting the discussion about Pseudocatalase I tried to purchase pc-kus powder from eBay but the transaction didn't do through. Then I received a mail from the seller as I had already committed to buy it.
        Then on 1 Jan a small sum of money was withdrawn. As if somebody was wishing me happy new year with a warning.
        Flavio also send me an email too asking "keep on the right track" during the same time.
        That's why I have named him in the FIR ( first information report) otherwise I would not have named him and not even mentioned here.
        Of course there can be no link at all as I was also making several online purchases, I am just giving an explanation for my sudden outburst.
        • Friends, be aware of this person.

          He accuses people based on "nothing".

          He might accuse you for any bank robbery, rape or kidnap.

          Regards.

  • Sorry for using bad language.
    I was worked up.
    As I mentioned some facts there too.
    I can't delete it.
  • http://simonsvitiligoblog.com/dead-sea-21-days-at-one-of-the-most-i...
    Reply
    FLAVIO
    June 7, 2014 at 3:15 am
    Simon,
    Do you have access to buy PC-KUS whenever you want, since you’ve been in German?
    If so, would you mind to order one for my 13 year-old son, considering that I would pay you in advance ? You would have to ship it to Florida…
    I’m going to Dead Sea with him in June 20th. I will follow the treatment as you described. Maybe I will meet Prof. there.
    Last, but not least, I’ve been developing my own PCat. But I would really like to compare the effectiveness to the German one. I promise to post every single formula detail if they have similar performance/results. If not, I will abandon my project.
    I have no intention to make money with this. BTW, nowadays I’ve been building UVB-NB hand helps for ebay buyers at cost price ( as volunteer work).
    Please let me know.
    Regards.

    ( this has been quoted just to show he is selling fake uvb, pckus on eBay. SO EVERYBODY BEWARE)

    A VIRUS MAY ALSO BE PUT ON THIS WEBSITE.... SO BEWARE

    I am taking a risk coming here again will not be coming here again until Steve resolves this at his end.

    I have blocked all my cards. Made named police report against Flavio Coragem and his other alias, at the Cyber Cell of Lucknow Police statio . I have good relation In the Home Ministry, India. First we would have locate his location in the United States.
    • Dear Steve,


      I don't recognize this person anymore...

      It's true that I sold some UVB-NB at Cost Price at ebay (no profit at all). However, because they were charging me a fee (sales commission), I was in fact paying to donate it.  So I decided to donated the UVB-NB hand helds directly at VitiligoFriends, insted, as you and friends know.

      Regards,
      Flavio

      • Dear Steve,
        Flavio has donated me a handheld uvb, which is working really great.I have got pigment on face using it.
        He dint take even transportation charge also from me.
        Such a gentleman he is.
        I can't see this kind of accusation on him, which is completEly baseless,
        We need flavio in this forum undoubtedly.
        Please help.....
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