Forum

Replies

  • Lachlan Hay April 3, 2011 at 10:10pm

    Hi DJ,

    I work for Clinuvel and I'm glad you found the video interesting (and hopefully useful). We're working on a series (as well as another new vitiligo-focused project which we'll kick off soon), but I welcome your feedback; either on VF or by email (mail@clinuvel.com). If there's a particular topic you'd like explained, I'd be interested to hear about it and see if we can't incorporate some information into a future video.

    As an aside, we've just published a new blog post focused on vitiligo measurement. It's slightly off topic, but might be of interest, focusing on how we 'measure' vitiligo and the effectiveness of treatements, see: http://www.clinuvel.com/en/blog/news/%E2%80%98measuring%E2%80%99-vi...

    Thanks again for your support

    Lachlan

    • HAL > Lachlan Hay May 29, 2011 at 5:36pm

      Hi Lachlan, I was wondering if the trials are underway and it any results have been seen?  I am very anxious to see what happens with this as I feel is seems an effective way to treat vitiligo.  I pray a better treatment/cure is found!  Thank you for what you do! 

      • Lachlan Hay > HAL May 29, 2011 at 7:35pm

        Hi HAL,

        We have started trials in the US and our European trials are set to start in June (have a look at http://ww.clinuvel.com/vitiligo for more on this).

        It will take time for results; we will not be able to release any reliable results until the end of the study period and it is possible that this won't be until 2012 (there are a few factors out of our control which will contribute here).

        We appreciate the support of the whole community but also want to ask for your patience while we take the necessary steps to ensure the drug is safe and effective in vitiligo.

        As always, I'm happy to address any questions you may have.

        Lachlan

        • John Arbizzani > Lachlan Hay May 30, 2011 at 8:47am
          Lachlan,
          I have been Following clinuvel's interests in vitiligo and the scenesse treatment.  Just wanted to say how grateful us vitiligo sufferers are to have people like you trying to make a difference! And I know I speak for everyone who has vitiligo! Companys like clinuvel help give us all hope. It's only a matter of time until there are better treatments, and I know clinuvel will contribute to the vitiligo community! Thanks again! 
          John A
          • HAL > John Arbizzani May 30, 2011 at 9:56am
            Very well said John! I absolutely agree! 
  • Bamsegutt March 29, 2011 at 8:39pm

    Thanks DJ ..this is my favorite clip...it show what really is going on under vitiligo skin, the question is what is the underline cause which makes the antibody (Lymphocyte) to go crazy and attack our melanocytes.

     

    The good ting that we learn now a days ,   Melanocytes are not dead but  just dormant .. some doctors still say  vtligo is the death of melanocytes but it is not.

     

    Let us keep on trying until we find the one which help us to repigment ,,

     

    We don`t have to give up!

     

    Bamsegutt

     

This reply was deleted.