Before a new drug is marketed volunteers are always needed so the companies ask people would they be willing particpants in a new vitiligo cure and nobody knows what will happen because it's experimental and some of the side effects may be mild like minor skin rashes or photosensitivity to light or some of the side affects can actually be deadly because of other underlying medical conditions would anybody here be a willing participant for the study of a new vitiligo drug even if it possibly caused you death ?????
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I don't know how it is around the world but here in the States you first have to qualify, be under a doctor's supervision and you are compensated through the company.
My mom just finished a year long drug trial because of her health issues and she had to keep meticulous records on her health at home and she was under strict doctor's supervision, having to go in and be tested bi-weekly I believe.
If there was any decline in her health at anytime during the trial, she could withdraw.
Without drug trials we wouldn't have the advances in medicine that we have today. That being said, these drug trials are expensive and I don't think that the science is that advanced on the front of Vitiligo. I just don't think that the drug companies would invest that much in our cause given that it's lesser (in the fact that it doesn't affect as many people and isn't as life threatening as other) auto-immune illness.
If they ever do come out with a cure for vitiligo years from now I would be honored to be a test subject despite of the possible dangers, I look at it this way I'm almost 46 years old now and pretty much lived my life I would do this if they promised me like a hospital or clinical ward in my name so that my kids and grandkids could see that I made a diffrence in the war on vitiligo, I don't mean to sound morbid but we all have to die one of these days so at least if I'm gone in the name of science I would be honored to get some name recognition so that my name could live on for future generations.
i would if (when) i had larger areas of depigmentation. not really looking at it as a cure... but a way to help the cause.
i never look at anything as working till i see its working, then i dont suffer with false hope.
I would do it. If it was held under a medical team doing research. I've handled some very nasty cleaning solvents when I was younger and learning about skin absorption through my safety manuals I should have been suffering with nervous disorders and several other issues.
I would do it because the younger people here and generations to come need a cure. I believe our atmosphere is thinning and the sun is our biggest enemy. I blister with 10 minutes of sun unless I'm covered in sun block,long sleeve shirts and a hat. I would do it.Hell yes!
I will consider myself, absolutely. Unfortunately, I do not have vitiligo, hence, I cannot be the candidate. My daughter is too young for research studies. However, I did participate in a research study during 1991 for a new dental research product. 19 years later I am still fine. Because of that research participation, I ended up continuing and blessed with good dental hygiene.
Carl, You always bring good points to the forum. I became your fan, when you said, you opened a second phone line at you home dedicated for vitiligo discussions. I will call the line one of these days !
I myself wouldn't mind being in a clinical trial for a new vitiligo treatment but I just get tired of hearing about those trials for other diseases or disorders
Excellent question!
And the answer to that would be NO NO NO NO HELL. FREAKING. NO.
I consider myself fortunate that some annoying white patches are the only "disease" I suffer from (quotations used as I consider a disease more something you would get from licking the toilet seat in a public bathroom, not something you develop for reasons unknown).
Seriously. I'm a very healthy individual and I consider myself blessed for that, which is why the only treatment I am pursuing is cosmetics in nature (depigmentation).
Replies
My mom just finished a year long drug trial because of her health issues and she had to keep meticulous records on her health at home and she was under strict doctor's supervision, having to go in and be tested bi-weekly I believe.
If there was any decline in her health at anytime during the trial, she could withdraw.
Without drug trials we wouldn't have the advances in medicine that we have today. That being said, these drug trials are expensive and I don't think that the science is that advanced on the front of Vitiligo. I just don't think that the drug companies would invest that much in our cause given that it's lesser (in the fact that it doesn't affect as many people and isn't as life threatening as other) auto-immune illness.
If they ever do come out with a cure for vitiligo years from now I would be honored to be a test subject despite of the possible dangers, I look at it this way I'm almost 46 years old now and pretty much lived my life I would do this if they promised me like a hospital or clinical ward in my name so that my kids and grandkids could see that I made a diffrence in the war on vitiligo, I don't mean to sound morbid but we all have to die one of these days so at least if I'm gone in the name of science I would be honored to get some name recognition so that my name could live on for future generations.
i never look at anything as working till i see its working, then i dont suffer with false hope.
I would do it because the younger people here and generations to come need a cure. I believe our atmosphere is thinning and the sun is our biggest enemy. I blister with 10 minutes of sun unless I'm covered in sun block,long sleeve shirts and a hat. I would do it.Hell yes!
Carl, You always bring good points to the forum. I became your fan, when you said, you opened a second phone line at you home dedicated for vitiligo discussions. I will call the line one of these days !
I myself wouldn't mind being in a clinical trial for a new vitiligo treatment but I just get tired of hearing about those trials for other diseases or disorders
And the answer to that would be NO NO NO NO HELL. FREAKING. NO.
I consider myself fortunate that some annoying white patches are the only "disease" I suffer from (quotations used as I consider a disease more something you would get from licking the toilet seat in a public bathroom, not something you develop for reasons unknown).
Seriously. I'm a very healthy individual and I consider myself blessed for that, which is why the only treatment I am pursuing is cosmetics in nature (depigmentation).