Any Segmental Vitiligans out there..

I know that the segmental form of Vitilgo is a very small percentage but would love to know anyone else with this form and whether its easier to treat or different in any way with the method of treatment? Please share your experience here ...as ive just started on protopic after noticing after 6 months that i had vit I d love to know your story x

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  • yes i cannot comment on this with out seeing pictures of affecteda reas
    dr vivek
  • dbas

    segmental vitiligo responds well to melanocyte transplant

    however if possible send me some pictures to nobleclinic@gmail.com for more info on this

    dr vivek

    • dr vivek i can send you some pictures. Im really interested to see if this will lead to scarring or ay side effects. its a strip down my forehead and on my cheek so anything that will reignite the cells will be so helpful
  • Yes Dbas, mine is segmental. I cant say its easier to treat from experience but read that its not easy to treat. I actually think that it all depends on the body function, I have repigmented to an extent though and still repigmenting.

    Tried steroid for 1wk when it started, no difference. Also tried Vitix for 6months wit morning sun exposure, no difference.

    Vitamin and natural therapy worked for me

    • Thanks Ogo when u say vitamin and natural therapy what exactly does that entail?
      • Hi Dbas,

        By Vitamin I mean combination of Vit B12 (2000mcg daily), Folic Acid, Vit B5 (Panthotenic Acid) , Vit C, in all of it I have been on antioxidants like Green tea, also dark green veggies which I juice more, carrot also.

        I try to cleanse my live every now and then, I started with Milk Thistle then learnt about natural means from www.thewellnesswell.net. I was once on St. Johns Wort and CoQ10 for about a year in combination of the vitamin.

        I also try as much as I could to eat natural foods rich in psoralen.

         

        Sometime its hard for me to put down all I have been doing, but just gave you the basics and to top it all, I get my body in a position to heal itslef....Living Positively.

         

        Hope this helps......

        • Ogo,

          compliments.  i hope you had a good Christmas. please where can one buy thewellnesswell product in nigeria or do you have to order from them.

           

          Regards,

           

          • Compliments MaryJane, yes my Christmas was good, hope u had a good one too? Not locally available in Nigeria yet, consult her on www.wellnesswell.net.

             

            Great New Year

      •  

        They say It is easier to treat Segmental vitiligo by surgical therapies like  cell transplantation , once  segmental vitiligo gets stable it stays stable longer normally it spreads between 3-12 months .

        The case of Segmental V can be nerve associated ting it may not be autoimmune disorder.

        What ever you want to try just do it sometimes vitiligo is individual  .

        Good luck!

        Bamsegutt

         

        • Really Vitiligo is individual because in my case, the progression was so fast int first and second year and I continued getting new spots around every February even as I was repigmenting till earlier this yera again when I got a new patch that I fought and it repigmented as fast as it came.

           

          I guess mine is autoimmune disorder as I have been diagnosed of Anemia and after about Three months, they told me am no longer anemic. Was recently diagnosed too of Arthritis. Am on it and trying to find out more about my Vit. By Feb 2011, mine will be 6years

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