So even though I've had vitiligo since I was in 8th grade I still have not learned how to embrace it or not let it bother me as much as it does. I don't know if it's because it's gotten a lot worse than it was over the past couple of years or if I just have more people ask questions now which makes me feel more self-conscious. I want to learn how to accept it so any words of encouragement would be greatly appreciated!
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I have lived with vitiligo all my adult life. I accepted that it was an expression of me. I was influenced by my mother to treat myself well and be independent and well educated.
It was not easy but I am happy with me and most people see that. I have had several people tell me later that they didn’t notice my hands. I always find that amusing since I am in the public eye all the time.
I use to be a workstation support analyst and I would go to users and repair the computers. I would visit at least 10 people a day and most of the time they would see me, not my vitiligo. I think it is because of how I feel about myself.
Ashley, I am an older woman who just received the diagnosis 6 months ago. I freaked out and now I can see the skin color loss but my friends and family do not say anything about it. I have fair skin and it is not so noticable now. I think that scripting a response for people who do not know you is a good thing to think about. Like "I have a skin condition that is not contagious and the color is leaving my skin in patches." Your friends and co-workers will see you not your skin. You can openly discuss the condition with your friends. Some days are fine while other days you may feel sensitive. Allow yourself to have the feelings that you have. Remember that if people are only going to see the outside you then they are missing getting to know you. Thoes people are not worth spending your time You are beautiful.
Your right. I have good days when it doesn't really bother me but then other days I look in the mirror and cry. I feel totally disgusted with myself. My friends and family only ask about it when I have dr. appointments and they are very supportive of me when I do get down on myself but it's the crappy people in the world who look at me like I'm a freak of nature or who ask ignorant questions about it.
You just have to understand that it is part of you, and not put so much thought to it. The more I thought about it, the worse I felt when someone would look at me.
Hi Ashley! It took me over 20 years to get to the point where I don't wear makeup....I feel so much better in my own skin....everyone has their own journey towards self acceptance...you will get there. I know that it is hard...i still have my days but I cling to the fact that God doesnt make mistakes!
Replies
I have lived with vitiligo all my adult life. I accepted that it was an expression of me. I was influenced by my mother to treat myself well and be independent and well educated.
It was not easy but I am happy with me and most people see that. I have had several people tell me later that they didn’t notice my hands. I always find that amusing since I am in the public eye all the time.
I use to be a workstation support analyst and I would go to users and repair the computers. I would visit at least 10 people a day and most of the time they would see me, not my vitiligo. I think it is because of how I feel about myself.
Be happy with yourself.
Check out http://www.merryclinic.com/vitiligo/treatment.htm