1st Time

Hello every one you know what i have never talked to anyone about my vitiligo exept my family and close friends. I have vitiligo on my fingers and im starting to get sum under my nostrils. I am dark skinned so you can see it easily on my hands. It never used to bother me intill i got out of high school and thats when it expanded rapidly. Its crazy becuase no one will ever know what we go through on a day to day basis. I have never met someone who has vitiligo like me although i have seen ppl with it. I have read some of the profiles on here and its crazy becasue i feel the same way. About to years ago i started a sales job that i was really good at. it was kind of weird at first because i deal with alot of ppl and i could see them looking at my hands. i wanted to quit so bad because i just felt too unconfortable. One day i had a dream that i didnt have vitiligo and i just blended in with everyone esle, but sadly i woke up. We all have something special and we are strong minded ppl i mean come on we have to be. There is a purpose for us and what that is i dont know yet but we are to do something. i feel so different from eveyone else in a good way and in a bad way. Now i just make jokes about my viti especailly to little kids. I tell them that i was painting and fell asleep and that my the paint never came off. Or i tell them that i was burned on 4th of july by fireworks. Well anyways im exited to talk to ppl who feel just like me so plz send me a message if you feel my pain. Oh and the question that every vitian askes is: has anyone tried anything that has worked on there hands? I was thinking about getting it tattood but i dont know i heard thats dangerous. and also i have always wanted to try uv treatment has anyone done that?

Wsup brother? Thanks for posting! I have way too many tattoos to count, and they didn't affect my skin at all. At first I was nervous about getting tatooed because I thought it would increase the spread to new areas, but no. I'm also brown skinned and have lost color in my fingers and hands. But my customers don't seem to be bothered by it. I guess they're very polite, or maybe they haveproblems ofb their own and they can't be bothered by mine. LOL! Because of my kind of work, I can wear cotton gloves and hide in them, but I choose not to. I make a conscious effort to remove my gloves when dealing with clients. I guess I feel that if I expose them to it now, maybe they'd be less likely to give other people strange looks later. I believe that we have to educate people on 2 things. 1. We need to educate people on the common-ness of Vit, and 2. We need to educate people that there are many of us who are Not Bothered by our skin color, and therefore they shouldn't be.

Replies

ROSIE PENA August 12, 2010 at 9:42am

Hi Alex I also feel your pain, I have had vitiligo for almost 20 yrs, I have been extremely lucky it has spread very slowly over the yrs, now that I am turning 40, It is spreading faster. I have it all over my hands, also my elbows, and around my mouth, and now its starting on my feet. But you know wha? people stare, but I am not dying, I am as healthy as can be, as long as it does not bother my husband,kids and loved ones, It doesnt bring me down much. Yes ofcourse there are days that Im like DAMN WHY ME?? but I stop and tell myself , YOU are not dying and you have your hands and feet! I tried the uv treatment for a while, it worked for my little spots that were just developing, but I gave up on the hands. There is nothing we can do for now but just mask it. I just found out about a cosmetic system called Microskin It is waterproof and it lasts for days. Im going to check it out.
Ogo Maduewesi August 8, 2010 at 7:52am

Can understand the way it is for you and ur sales job, I had to quit my sales job at the peak of mine because I wasn't doing well, I was so bothered about people staring at my patches and threats were coming from the job because of my low performance, I depigmented the more then out of stress.

Today its a different story for me because to the Glory of God I have been able to come to terms with it despite the fact that its on my face and am very dark skinned.

About the dream, two of my sis and a friend has had that dream about me and I always laugh anytime they call me to tell me about such dream.
Dawn L-B August 7, 2010 at 11:08pm

Incredible. I have also dreamed that I have no vitiligo and yes sadly I woke up. Kids ask me about my hands and feet, I tell them I was born that way, the mental stress is terrible knowing that they are lall trying not to look at your hands and feet, but looking any way.

I see my doctor on Tuesday this week to start my depigmentation process, hopefully she will accept to do this for me. Good luck with anything you decide to do, vitiligo is not easy to deal with.
- Ogo Maduewesi > Dawn L-B August 8, 2010 at 6:52am
  
  My dear Dawn I can feel u, we continue striving to create awareness and get the medical community to come up with some sort of help than they have ever done.
  
  Hope the depigmentation stuff works for you.
  
  Rgds to ur girls
Mike Gonzales August 7, 2010 at 10:34am

Wsup brother? Thanks for posting! I have way too many tattoos to count, and they didn't affect my skin at all. At first I was nervous about getting tatooed because I thought it would increase the spread to new areas, but no. I'm also brown skinned and have lost color in my fingers and hands. But my customers don't seem to be bothered by it. I guess they're very polite, or maybe they haveproblems ofb their own and they can't be bothered by mine. LOL! Because of my kind of work, I can wear cotton gloves and hide in them, but I choose not to. I make a conscious effort to remove my gloves when dealing with clients. I guess I feel that if I expose them to it now, maybe they'd be less likely to give other people strange looks later. I believe that we have to educate people on 2 things. 1. We need to educate people on the common-ness of Vit, and 2. We need to educate people that there are many of us who are Not Bothered by our skin color, and therefore they shouldn't be.

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