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Mandatory reading for active non-segmental vitiligo sufferers

Posted by Robot on August 19, 2014 at 2:57am in Main

According to new studies, physical traumas, friction and injuries on the daily basis are the main explanation for vitiligo spreading.   

Also oxidative stress, of course.

Non-vitiligo sufferers don't have the genetic predisposition for that, but we have to avoid friction.

Please see the pictures and think about it...

PS: Hands and  feet don't need pictures to justify friction.

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Replies

  • Joyce OB September 2, 2014 at 1:57am
    Did you buy that device and do at home or go to Dr. office, how long did it take?
    • Joyce OB > Joyce OB September 8, 2014 at 1:52am
      Thank you Caroline!
    • Joyce OB > Joyce OB September 7, 2014 at 12:00pm
      Thank you Flavio!
    • Joyce OB > Joyce OB September 7, 2014 at 10:03am
      Hi Flavio, thank you so much for your offer, at this moment, I don't need it yet. I am going to have another dr appointment for more opinion. I have used protopic since August 20 this year, I have noticed some area on my eyebrow showing good result, but not for my forehead yet. I have only used it for 3 weeks. The dr told me I need to use it for 3 months to see the result. My current dr does not have nb- UVB. I plan to use protopic for 6 weeks first to see its result, then I will go to another dr's office to try nb- UVB light treatment. I would like to feel comfortable with the light treatment at dr's office first then think about to buy one in the future. Flavio, you have been giving this site lots of good information and support, I really appreciate it:)
      • Caroline Hayes > Joyce OB September 7, 2014 at 10:24pm

        You are right to give any vitiligo treatment at least 6 weeks, Joyce.  I'm not aware of anything that works much faster, in terms of visible results anyway, than this time scale.  So patience is definitely the key. Good luck.

      • Robot > Joyce OB September 7, 2014 at 10:34am

        Joyce, you are doing the right thing.  Unfortunately, doctors really don't know much about this disease.  I hope yours be an exception.  I have seen a few good ones.

        We (vit sufferers) have to stay together and share as much info as possible.  That's the only way to get rid of the white spots.

        I hope you have great results in your treatment.

    • Robot > Joyce OB September 5, 2014 at 12:16pm

      Joyce, if you need a 9w UVB device I can give one.  I have an extra one. Please let me know.

    • Joyce OB > Joyce OB September 5, 2014 at 6:54am
      Thank you Mia and Caroline for the information.
    • Mia Diakonova > Joyce OB September 2, 2014 at 7:51am

      I did couple of times at dr.'s office but then I bought the lamp and now do it at home. My doctor recommended me to buy it in order to save money, cause you need to do this procedure almost everyday. 

      I've been doing light therapy for the last 3 months and I really see some "movement" going on inside the white area. My white spots were almost round shaped and now they look more like flowers ) 

      • Caroline Hayes > Mia Diakonova September 5, 2014 at 2:09am

        Hi Mia,

        I found narrow band UVb beneficial too and was lucky enough to have it free of charge on the NHS as I live in the UK.  My course of treatment was a few years ago now and was given 3 times a week. This allows time for the white patches to "recover" on the in-between days.  The aim is to give just enough light therapy with each treatment to turn the white patches slightly pink and tight-feeling but without actually burning.  It is important to be aware though that a lot of people who achieve success using UVb relapse after the treatment has ended. So I would advise you to work simultaneously on making any diet and lifestyle changes that might be necessary to sustain your repigmentation.

        My recovery started (and has been sustained over 4 years now) with a nutritional approach but was helped along by UVb therapy. Feel free to read my story at www.vitiligoprotocol.co.uk and to contact me if you need any more information. Good luck :) 

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